About Us

Palliative care services are increasingly emerging in diverse cultural settings around the globe. Given the large cultural diversity in end-of-life care practices, we ask: How do global palliative care practices translate to various cultural contexts? How do they impact local notions of death and dying? And how, in turn, do culturally diverse practices of end-of-life care shape the practice of palliative care? This project studies the globalization and cultural mediation of palliative care practices, policies and discourses. Our ethnographic research focuses on three countries that are currently building a system of professional palliative care provisions:

Palliative care services are increasingly emerging in diverse cultural settings around the globe. Given the large cultural diversity in end-of-life care practices, we ask: How do global palliative care practices translate to various cultural contexts?

How do they impact local notions of death and dying? And how, in turn, do culturally diverse practices of end-of-life care shape the practice of palliative care?

This project studies the globalization and cultural mediation of palliative care practices, policies and discourses. Our ethnographic research focuses on three countries that are currently building a system of professional palliative care provisions:
Icon Indonesia_128x128px_web
Indonesia
India
Brazil

In Indonesia palliative care is most developed in a few large tertiary hospitals, but is currently including a growing number professional initiatives across the archipelago. Ethnographic research will focus mainly on Jakarta and Banda Aceh.

India has multiple promising palliative care programmes and initiatives, amongst others a successful community-based palliative care system in Kerala. Research for this project focuses on end-of-life care in the capital of India: New Delhi.

In Brazil, palliative care units and initiatives are concentrated in urban centers and mostly located in hospitals. The research will both take place in institutions and follow families in the home setting. Fieldwork will be carried out in the metropolitan context of Sao Paulo and smaller towns in southern Brazil.

News & Events

Navigating Boundaries in Ethnographic Fieldwork

On Friday the 5th of November, members of the CADS Institute engaged in a lively roundtable lunch discussion on navigating boundaries in ethnographic fieldwork. The roundtable was intended to share experiences and open up questions about navigating proximity and distance when engaging in research relationships and was supported by the Leiden University Institute of Cultural Anthropology and Development Sociology and the ERC-funded Globalizing Palliative Care research project.

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The participants and workshop giver HansJorg are sitting at a desk

Lively and helpful conversation with ethics advisor Prof. Hansjörg Dilger

A discussion about ethics is integral to any ethnographic fieldwork preparation. Ethnographic research on end-of-life care poses particular ethical, methodological and emotional challenges. With all team members preparing for fieldwork, the Globalizing Palliative Care project team was very fortunate to have our external ethics advisor Prof. Hansjörg Dilger visit and discuss potential ethical dilemmas with us on Friday 5 November 2021. Many thanks to Prof. Dilger for a lively workshop providing very helpful tools for navigating the field!

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